2004[The Boy Whose Skin Fell Off][BT下载/迅雷下载]

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【导演】:Patrick Collerton
                            【主演】: Edna Kennedy/Jonny Kennedy/内尔·麦克安德鲁
                            【标签】:
                            【制片地区/国家】:英国
                            【年份】:2004
                            【语言】:英语
                            【上映时间】: 2004
                            【片长】:
                            【原名】:The Boy Whose Skin Fell Off
                            【又名】:
                            【评分】:豆瓣：0 ，IMDB：8.8
                            【IMDb链接】: tt0466710
                           
                           
                           
在这部The Boy Whose Skin Fell Off片中,A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full. Written by Leonie Davidson Channel 4.
                    A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest ...
                    

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